LEVITTOWN, Pa. (AP) — A suburban Philadelphia toddler whose battle with a rare degenerative genetic disorder inspired the state to expand medical testing for newborns has died.
Hannah Rose Ginion's parents confirmed the 23-month-old's death Sunday on their "Hope for Hannah" Facebook page.
About 1,000 people attended a candlelight vigil Sunday night at a school in Levittown.
Hannah's Law went into effect this month.
It requires medical facilities to test for lysosomal storage disorders, including the Krabbe disease that ravaged Hannah's nervous system, causing blindness and forcing the use of a feeding tube.
Hannah's parents, Justin Ginion and Vicki Pizzullo, attended the bill signing in October. They say she was diagnosed too late for a potentially helpful cord blood transplant.
Hannah's mother, Vicki Pizzullo, says the community support has been a blessing.